Measuring what matters:
A cross cultural mapping of the meaningfulness of validated digital mobility outcomes in people with Parkinson’s disease in Africa
PI: Dr Ríona McArdle
Funder: Newcastle University’s Centre for Transformative Neuroscience Accelerator Award.
BAM Project Members: Prof. Lynn Rochester, Jack Lumsdon, Megan Hanrahan
Contact: Dr Riona McArdle
Background
Due to high disease burden and healthcare staff shortages, sub-Saharan Africa are most likely to benefit from the rise of digital health technologies, yet limited research has been done.Wearable technologies can remotely and continuously capture changes in disease-related symptoms
It is unclear which digital mobility outcomes capture aspects of disease that are meaningful to people with Parkinson’s. This may be different in African populations due to cultural expectations and gender/age roles.Aims & Objectives:
Ensure true digital inclusion and equity in the development and implementation of digital mobility assessments by examining acceptability and utility in people with Parkinson’s in two African countries.ICritically explore the meaningfulness of digital mobility outcomes from the perspectives of people with Parkinson’s and their carers in Ghana and Kenya.Outcomes:
Achieve true digital inclusion by determining the relevance of digital healthcare and research in AfricaSupport the FDA letter of intent for regulatory qualification of digital mobility outcomes with Mobilise-D.