MJFF Project

Measuring what matters – in whom it matters – ensuring diversity and equity in Parkinson’s disease research and care

Principal Investigator: Prof. Katie Brittain

Funder: MJFF

BAM Project members: Prof. Lynn Rochester, Dr Ríona McArdle, Megan Hanrahan, Jack Lumsdon

Contact: Prof. Katie Brittain

Background

Parkinson’s disease is a common neurodegenerative disease that impacts a person’s mobility, including their walking ability
Walking is an important outcome in Parkinson's; however, we lack a reliable measure used to assess walking ability in research and healthcare

Aims & Objectives:

We will then assess which digital mobility outcomes measures provide a reliable method for monitoring walking in Parkinson's
Inclusive of under-served groups, this study aims to explore people’s experience with Parkinson's symptoms and the impact they have on mobility

Outcomes:

Findings will inform the development of meaningful digital mobility outcomes for Parkinson's and contribute to the improvement of future treatment outcomes